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lily
08-08-2007, 02:21 AM
If people are willing to take the risk, why stop them? I love Judge Rogers opinion. (http://www.msnbc.msn.com/id/20163190/)

Court denies terminally ill experimental meds
FDA approval process can take years but dying can't have early access


Updated: 23 minutes ago
WASHINGTON - Terminally ill patients do not have a constitutional right to
be treated with experimental drugs, even if they likely will be dead before
the medicine is approved, a federal appeals court said Tuesday.

The ruling by the U.S. Court of Appeals for the District of Columbia Circuit
overturned last year’s decision by a smaller panel of the same court, which
held that terminally ill patients may not be denied access to potentially
lifesaving drugs.

The full court disagreed, saying in an 8-2 ruling that it would not create a
constitutional right for patients to assume “any level of risk” without
regard to medical testing.



“Terminally ill patients desperately need curative treatments,” Judge Thomas
B. Griffith wrote for the majority. But “their deaths can certainly be
hastened by the use of a potentially toxic drug with no proven therapeutic
benefit.”

Food and Drug Administration approval of drugs generally requires extensive
testing that can involve years of trials and thousands of patients.





The Abigail Alliance for Better Access to Developmental Drugs and the
Washington Legal Foundation sued the FDA in 2003, seeking access for
terminally ill patients to drugs that have undergone preliminary safety
testing in as few as 20 people but have yet to be approved.

FDA spokeswoman Susan Cruzan said the agency was pleased with the decision,
which she said considered the public’s safety and the need for access to
experimental drugs.

Abigail Alliance founder Frank Burroughs pledged an appeal to the Supreme
Court. Burroughs’ daughter, Abigail, was denied access to experimental
cancer drugs and died in 2001. The drug she was seeking was approved years
later.

“What the opinion by Judge Griffith is saying is, ’We don’t want to risk one
life or a few lives, even at the expense of the lives of hundreds or
thousands of people,”’ Burroughs said. “The logic of that escapes me.”

A ‘startling’ ruling
In a sharply worded dissent, Judge Judith W. Rogers called the ruling
“startling.” She said courts have established the right “to marry, to
fornicate, to have children, to control the education and upbringing of
children, to perform varied sexual acts in private, and to control one’s own
body even if it results in one’s own death or the death of a fetus.”

“But the right to try to save one’s life is left out in the cold despite its
textual anchor in the right to life,” Rogers wrote.


Rogers was joined by Chief Judge Douglas H. Ginsburg. The case cut across
party lines, with conservative and liberal judges taking both sides of the
dispute.

The court noted that there are government programs that provide access to
experimental drugs in certain situations. It said the matter is not closed
and said Congress might be a better venue than the courts to address the
issue.

Burroughs said he expects such legislation to be introduced this session.
Both the Senate and House have considered such legislation but it languished
in committee.

Stoner
08-08-2007, 02:32 AM
I strongly believe that the terminally ill should be allowed to sign a waiver and take any experimental drug they want.

Lazarus
08-08-2007, 06:04 AM
I strongly believe that the terminally ill should be allowed to sign a waiver and take any experimental drug they want.


I second this notion.
But I would go even further and remove the " terminality " from the equation.
Why should anyone be forced to wait until all " authorized " treatments have failed and the disease has progressed to a terminal state for this last-chance avenue to be travelled?

The prospect of hope can be the greatest cure.
Placebos can cure diseases too.

ViolaLee
08-08-2007, 06:13 AM
Seriously, if you're terminal, you're going to die anyway. Why not let people take experimental drugs for a chance to live?

Survivor
08-08-2007, 05:20 PM
People should have a choice, regardless of whether they are in terminal stages .

Deadshot
08-08-2007, 05:30 PM
I agree with both views of this thread.

If terminal, you should be able to take ANY drug that either eases the pain and/or has a chance to heal you.

Also, if your willing to accept the risk, ANY experimental drug or "banned" substance should be on the table.

Great posts:clapper:

Jaaaman
08-08-2007, 05:37 PM
I agree with both views of this thread.

If terminal, you should be able to take ANY drug that either eases the pain and/or has a chance to heal you.

Also, if your willing to accept the risk, ANY experimental drug or "banned" substance should be on the table.

Great posts:clapper:


I agree. :clapper:

Mayberry
08-08-2007, 05:55 PM
Ditto.

Alonzo
08-08-2007, 06:34 PM
I agree with both views of this thread.

If terminal, you should be able to take ANY drug that either eases the pain and/or has a chance to heal you.

Also, if your willing to accept the risk, ANY experimental drug or "banned" substance should be on the table.

Great posts:clapper:


I disagree with the non terminal patients. If the medicine is there people may take it, since they simply assume nothing will happen to them. And if it's a medication that hasn't shown problems yet, the doctor could reinforce that by saying there's no real risks to it.

I just think there are too many risk that, no matter what we say, there will be uninformed decisions made and it will likely be made worse by some of the doctors who treat it like regular medicine.

I have a vet for one of my pets who has given me experimental medicine when the pet was terminal. But to listen to him it was harmless stuff and there were no real risks. While nothing happened (and the medicine didn't work), that kind of attitude could be dangerous with the wrong combination of doctor and patient.

In short, terminal yes, non terminal no.

Mayberry
08-08-2007, 08:10 PM
In short, terminal yes, non terminal no.
I say that decision is mine to make.

lily
08-08-2007, 09:23 PM
I disagree with the non terminal patients. If the medicine is there people may take it, since they simply assume nothing will happen to them. And if it's a medication that hasn't shown problems yet, the doctor could reinforce that by saying there's no real risks to it.

I just think there are too many risk that, no matter what we say, there will be uninformed decisions made and it will likely be made worse by some of the doctors who treat it like regular medicine.

I have a vet for one of my pets who has given me experimental medicine when the pet was terminal. But to listen to him it was harmless stuff and there were no real risks. While nothing happened (and the medicine didn't work), that kind of attitude could be dangerous with the wrong combination of doctor and patient.

In short, terminal yes, non terminal no.


I have to agree with Mayberry on this. I think I can speak from both sides of the issue.

I was asked to try a new insulin and an electronic type of diary. I signed the papers, knew the risks and was also monitored by both the nurse at the doctors office and a number I was to call weekly with the numbers in the diary, thus adjusting the units of insulin according to automated monitering system. Long story short, the insulin did wonders, the monitor, which was suppose to save the doctor time and visits were crap. I knew the risk and it took a while to get my sugar back where it should, but if it helped someone else, then it was all worth it.

My sister, who I have talked about before had to wait until the very end stages of her cancer, before all the fighting by her doctor to get her on experimental medicne finally worked. It may have given her a month, maybe two longer. Time that she used every minute of to the hilt. While she did die of the cancer, the doctor said in the end, it was from the side effects of the experimental drugs. She told me she wouldn't have had it any other way.

So, yes.....it should be up to the patient.